Shares Research
Improve the sharing of medical records
Enhance both the quality of SUD care delivery and patient outcomes by leveraging novel, automated data segmentation methods for more effective, patient-centered data sharing.
Sensitive Data Categories
Physicians’ Perspectives on Sensitive Data Categories
Sensitive Medications
Ingredient-based Medication Code Sets
Electronic Consents
FHIR Executable Consents
Data Sharing Segmentation
Physicians Mental Models for Categorizing Data
Our mission
Improve SUD Care Through Data Sharing
The SHARES study aims to improve care for individuals with SUD by enhancing the sharing of medical records between patients and providers. It seeks to balance patient privacy and data access needs through automated data segmentation methods, interdisciplinary research, and stakeholder engagement.
Improving Data Segmentation Accuracy Through Clinician-Informed Contextual Reasoning
Mengyi Wei, PhD; Anita Murcko, MD; Patricia Bayless, MD; Preston Lee, PhD; Maria Adela Grando, PhD
Assessing the effectiveness and scalability of FHIR-based granular data segmentation technology
Preston Lee, PhD; Abhishek Singh Dhadwal, MS; Martha Kaiser, MS; Soroush Dianaty, MD; Eric Lott, MD; Gagandeep Singh, MD; Darwyn Chern, MD; Jason Walonoski, MS; Maria Adela Grando, PhD
Designing Granular Consent Tools for Sensitive Health Data: Challenges, User Needs, and Stakeholder Guidance
Reid A. Cooper, BS; Mengyi Wei, PhD; Martha Kaiser, MS; K. Caine; D. J. Chavez; Jeff Coughlin, MS; K. Davison, Hannah K. Galvin, MD; S. Lane, A. Laws, C. U. Lehmann, P. Lossy, Maria Moen, BPS; S. T. Rosenbloom, J. Seitz, M. Sharko, Julia Skapik, MD; R. Uy, L. Weaver, Maria Adela Grando, PhD
Bridging ethical gaps in digital health research: a framework for informed consent aligned with NIH guidance
Rahma Rizky Alifia, BS; Malihe Sadeghi, PHD; Maheswari Eluru, BDS; Mohammad Jafari, PhD; Maria Adela Grando, PhD
Patient-Driven Sharing of Health Information: A National Effort to Advance Equitable Interoperability
Hannah K. Galvin, MD; Jeff Coughlin, MS; Marianne Sharko, MD; Maria Adela Grando, PhD; Mohammad Jafari, PhD; Serena Mack; Abigail English, JD; Carolyn Petersen, MS
FHIR Granular Sensitive Data Segmentation
Preston Lee, PhD; Daniel Mendoza, MS; Martha Kaiser, MS; Eric Lott, MD; Gagandeep Singh, MD; Maria Adela Grando, PhD
Balancing Privacy, Trust, and Equity: Patient Perspectives on Substance Use Disorder Data Sharing
Mengyi Wei, PhD; Michael Todd, PhD; Aimee Campbell, PhD; Darwyn Chern, MD; Eric Lott, MD; Mary Jo Whitfield, MSW; Nick Stavros, MBA; Elise Greenberg, BSW; Maria Adela Grando, PhD
Advancing Health Equity Through Substance Use Medical Record Data Sharing: Insights from Healthcare Providers
Mengyi Wei, PhD; Anita Murcko, MD; Sai Prathyusha Nookala, BS; Dharma Teja Bhattu, MS; Sai Jahnavi Vemula, BS; Darwyn Chern, MD; Eric Lott, MD; Mary Jo Whitfield, MSW; Nick Stavros, MBA; Deborah Ariosto, PhD; Maria Adela Grando, PhD
Physicians’ Perspectives on HL7 Information Policy Sensitive Value Set: A Validation Study through Health Concept Categorization
Maheswari Eluru, BDS; Daniel Mendoza, BS; Audrey Wong, BS; Mohammad Jafari, PhD; Patricia Bayless, MD; Darwyn Chern, MD; Christina Eldredge, MD, PhD; Rodrigo Fonseca, MD; Pedro Franco Fuquen, MD; Juan Esteban Garcia-Robledo, MD; Benjamin Grant Gifford, DO; Rhea Hans, MD; Eider F Moreno-Cortes, MD; Ajay Perumbeti, MD; Fabio Samir Vargas-Cely, MD; Lin Zhao, MD; Maria Adela Grando, PhD
Pediatric Consent on FHIR
Anton Voronov, BS; Mohammad Jafari, PhD; Lin Zhao, MD; Qixuan Hong, BS; John Pope, MD, MPH; Darwyn Chern, MD; Megan Lipman, BS; Adela Grando, PhD
Understanding the Impact of Contextual EHR Data on Physicians’ Perspectives on Sensitive Health Data
Hannah Kaufman, BS; Ipsha Banerjee, MS; Shafaq Siddiqui, BS; Adela Grando, PhD, FAMIA
A scoping review of healthcare effectiveness data and information set (HEDIS) substance use disorder measures
Oliver Ethan Goal, PharmD, MS; Isca Amanda, MS; Cameron Adams, MS; Adela Grando, PhD, FAMIA
Newsletter Updates
Enter your email address below to subscribe to our newsletter.