Shares Research
Improve the sharing of medical records
Enhance both the quality of SUD care delivery and patient outcomes by leveraging novel, automated data segmentation methods for more effective, patient-centered data sharing.
Sensitive Data Categories
Physicians’ Perspectives on Sensitive Data Categories
Sensitive Medications
Ingredient-based Medication Code Sets
Electronic Consents
FHIR Executable Consents
Data Sharing Segmentation
Physicians Mental Models for Categorizing Data
Our mission
Improve SUD Care Through Data Sharing
The SHARES study aims to improve care for individuals with SUD by enhancing the sharing of medical records between patients and providers. It seeks to balance patient privacy and data access needs through automated data segmentation methods, interdisciplinary research, and stakeholder engagement.
FHIR Granular Sensitive Data Segmentation
Preston Lee, PhD, Daniel Mendoza, MS, Martha Kaiser, MS, Eric Lott, MD, Gagandeep Singh, MD, Maria Adela Grando, PhD
Balancing Privacy, Trust, and Equity: Patient Perspectives on Substance Use Disorder Data Sharing
Mengyi Wei, PhD, Michael Todd, PhD, Aimee Campbell, PhD, Darwyn Chern, MD, Eric Lott, MD, Mary Jo Whitfield, MSW, Nick Stavros, MBA, Elise Greenberg, BSW, Maria Adela Grando, PhD
Advancing Health Equity Through Substance Use Medical Record Data Sharing: Insights from Healthcare Providers
Mengyi Wei, PhD, Anita Murcko, MD, Sai Prathyusha Nookala, BS, Dharma Teja Bhattu, MS, Sai Jahnavi Vemula, BS, Darwyn Chern, MD, Eric Lott, MD, Mary Jo Whitfield, MSW, Nick Stavros, MBA, Deborah Ariosto, PhD, Maria Adela Grando, PhD
Physicians’ Perspectives on HL7 Information Policy Sensitive Value Set: A Validation Study through Health Concept Categorization
Maheswari Eluru, BDS, Daniel Mendoza, BS, Audrey Wong, BS, Mohammad Jafari, PhD, Patricia Bayless MD, Darwyn Chern, MD, Christina Eldredge, MD, PhD, Rodrigo Fonseca MD, Pedro Franco Fuquen MD, Juan Esteban Garcia-Robledo, MD, Benjamin Grant Gifford, DO, Rhea Hans MD, Eider F Moreno-Cortes, MD, Ajay Perumbeti, MD, Fabio Samir Vargas-Cely, MD, Lin Zhao, MD, Maria Adela Grando, PhD
Pediatric Consent on FHIR
Anton Voronov BS, Mohammad Jafari, PhD, Lin Zhao, MD, Qixuan Hong BS, John Pope, MD MPH, Darwyn Chern, MD, Megan Lipman, BS, Adela Grando, PhD
A Knowledge-Driven, Generalizable, and Automatic Method To Create Medication Code Sets: Opioid and Antidepressant Use Cases
Daniel Mendoza, Isca Amanda, BS, Darwyn Chern, MD, Maria Adela Grando, PhD, FAMIA
Understanding the Impact of Contextual EHR Data on Physicians’ Perspectives on Sensitive Health Data
Hannah Kaufman, BS, Ipsha Banerjee, MS, Shafaq Siddiqui, BS, Adela, Grando, PhD, FAMIA
A scoping review of healthcare effectiveness data and information set (HEDIS) substance use disorder measures
Oliver Ethan Goal, PharmD, MS, Isca Amanda, MS, Cameron Adams, MS, Adela Grando, PhD, FAMIA
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